founder alzi-regional director adi asia pacific, dy suharya · 10 tips untuk berkomunikasi dengan...

Founder ALZI-Regional Director ADI

Asia Pacific, DY SuharyaPIPEBI, Jakarta, 19 April 2018

HUT PERNIKAHAN YAYA SUHARYA & TIEN SUHERTINI

15 AGUSTUS 1958 – 15 AGUSTUS 2012RIP Mom 3-8-1934/21-4-2017

Situ Ciburuy, Padalarang, Jabar, 1958 Kayu Putih Tengah, Jakarta, 2012

RIP Mom, Tien Suharya3-8-1934 / 21-4-17

The Caregivers

The Suharya’s

AgeApo-E Genetic

Vascular

factors

Trauma

History of

depression

Lifestyle

Nutrition

Diabetes

Education

Environment

Social network

Mental

exercise Fitness

Alzheimer’s Disease

Comorbidity

Stages of Dementia

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Mild Stage

• Misplacing items• Forgetting recent events / conversations• Having difficulty with operating more complex household appliances• Losing interest in hobbies • Repeating questions / statements / stories

ModerateStage

• Ability to think, reason, communicate & function deteriorates dramatically• Difficulty using household appliances & telling time• Self care capacity is generally retained• Behavioural symptoms e.g. wandering, restlessness & delusions may

emerge

Severe Stage

• Loses capacity for self-care• Dependent on caregiver for basic daily living activities e.g. eating,

dressing, toileting, bathing.• Behavioural disturbances such as agitation & aggression may be

present

Source : Voices From the Heart – Living with Dementia

Challenges

Despair Discouraged

Resentment

Anger

FrustrationOverwhelmed

Exhausted

Sorrow

Gains

Fulfilment Love

Patience

Encouraged

Achievement

Purpose and Meaning

Optimism

Stronger

What is meaningful activity?

“The purpose of activity is

1.not to kill time, but to make life,

2.not to keep a person occupied, but to keep them refreshed;

3.not to offer an escape from life, but to provide a discovery of life.”

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Benefits of meaningful activities

Reduce behavioural challenges

Improve sleep habits

Stimulate the minds

Develop and build relationships

Enhance physical and emotional well-

being

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Why does behaviour change?

Change in response to:

• physical environment

• social environment

• communication patterns

• tasks

• physical factors • personal preferences

Change in behaviour = UNMET NEED

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FIGHT FLIGHTor

Examples of Unmet Needs

Repetitive Vocalisation

Unheard needs, not validated, being assertive

Wandering

Boredom, purposeless, need to explore

Refuses Personal Care

Being assertive, self-protection from threat, self-sufficient

Rummaging

Seeking familiarity, purpose, exploration

Global Leaders

Effects on carers• High levels of stress

• Physical health suffers

• Social isolation

• Financial hardship

INDONESIA:

• 240 M Population

• PWD:

1 M in 2013

2 M in 2030

4 M in 2050

• USD$ 2.2 Billion per year (Costs)

ALZHEIMER INDONESIA

Aims to improve the quality life of people with dementia and their caregivers in Indonesia through advocacy, awareness raising, capacity building activities as well as collaborating with all stakeholders in establishing dementia friendly cities in IndonesiaEstablished: 3rd August 2013Facebook Followers: 2000 ++Caregivers Meeting Participants: 2000 ++Volunteers: 1000 ++

VISI ALZI:

MENINGKATKAN KUALITAS HIDUP ORANG DENGAN DEMENSIA DAN CAREGIVER DI

INDONESIA

SEMBOYAN:

JANGAN MAKLUM DENGAN PIKUN

#MELAWANPIKUN

10 WARNING SIGNS ALZ

DY Suharya

World Alzheimer’s Day

• 21 September adalah HariAlzheimer Dunia

• Diluncurkan di tahun 1994

• Event global yang dilakukan di lebih dari 60 negara

World Alzheimer’s Month

ADVOCACY

LEADERSHIP COMMITMENTSOLID SUPPORT

Support from Governor of DIY, Jakarta and Central Java

PARTNERSHIPS

National Seminar on Dementia 1st book on Alz in Indonesia

10 Signs animation video Jakarta videotron on traffic jam

WORLD’S ALZ MONTH

Global Recognition

Increased Awareness @ Schools (10,000 Students in 3 Days)

T Shirt & Book

Jalan Sehat

Caregivers Training

Caregivers Meeting Indonesia

• Caregivers Meeting #56, Jakarta 5th May 2018

• Depok #35

• Jogja #13

• Bandung #12

• Manado #9

• Malang #5

• Salatiga #4

• Medan, Solo, Surabaya, Bogor #3

• Bali #2

• Bekasi #1 (27th Jan 2018)

• Solo

How Can You Help?

• Become a Volunteer/Champion register di: http://bit.ly/volunteer4alzi

• Contribute your skills to ALZI’s activities

• Donate: http://www.kitabisa.com/melawanpikun

• Express love, care constantly

• Person first, not the task

• Forming meaningful relationships

• Maximize your time – creating “quality moments” ---> Happiness

How to Care for PwD

Person Centred Care (PCC)

Applying PCC

ISSUE PCC APPROACH

Memory loss• Be patient, repeat ‘new’ information constantly• Draw on long-term memory• Prompt with non-verbal cues, such as gestures or pictures

Disorientation• Orientate and reassure a person with dementia verbally and

through signs in their environment

Communication• Listen and observe body language• Allow time for a person with dementia to respond (Go at their

pace)

Self-Care • Support NOT “Take over” the task where possible

Wandering • Supervise and ensure safety within the environment

Challenging behaviour

• Find out why a person with dementia is behaving this way• Understand sometimes the behaviour is the only way they can

express themselves

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10 Tips untuk Berkomunikasi dengan ODD

Thank You!

info@alzi.or.id0816 86 3136

Alzheimer Indonesia

@alzi_indonesia

www.alzi.or.id

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